Evan started the delayed intensification phase of therapy a couple weeks ago. The first week he was at the hospital for three days, last week just one day, this coming week just one day. The week after next he will be at the hospital every day for five days.
During this phase, his doctors are using new chemo agents for him. The doxorubicin is much harsher for sure. He has varying degrees of nausea all day, every day. It is much worse right after treatment and every morning. He has had some vomiting but we are really trying to control the nausea with zofran and Benadryl. He has had one 7 day burst of oral steroids. He was off them this past week and starts another 7 day burst this coming week.
He still has all his hair but that should be thinning soon. Overall, he is doing great. His lab work last week looked really good. We continue to protect him from a lot of outside contacts since he will be immunocompromised by design. Generally his spirits are really good. He gets really depressed and anxious before treatment days because he knows what is coming. We are going to start him on Ativan prior to his next appointment to see if that helps.
Again, this disease, like so many diseases, is brutal. The cure is just as brutal. It has given me/ us a really interesting view on life. If you happen to think life is unfair, come talk to me. I'll show you unfair. We witness it every minute of every day. Yet, we have witnessed the beauty and fragility of life that so many are fortunate/ unfortunate to never see.
Keep the prayers coming for complete healing and for decreased symptoms and side effects for Evan. He is our hero.
We are praying in Jesus name......❤️
Prayers for you all, especially little warrior Evan. His strength amazes me❤️